The CHARGE Syndrome Foundation aims to discover the causes and improve the management of CHARGE syndrome through research and education, support individuals with CHARGE syndrome and their families, and promote awareness among professionals and the public.

CHARGE Syndrome Foundation

CHARGE Syndrome Foundation: Clinical Research Grant Program

Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization aimed at driving education, support, and research for hypothalamic hamartomas. The organization is dedicated to the early detection, improved treatments, and management of hypothalamic hamartomas as a complex medical syndrome with the ultimate goal of finding a cure.

Hope for Hypothalamic Hamartomas

HH Research Grant

The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families, and other concerned parties. Their ultimate goal is finding a cure.

Angelman Syndrome Foundation

Angelman Syndrome Foundation Call for Proposals

Our mission is to find better treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. The Fanconi Anemia Research Fund (FARF) is the world leader in advancing research for better treatments and a cure for Fanconi anemia, having supported over 260 grants to more than 202 investigators worldwide with $33 million in research projects since its founding in 1989 by parents Lynn and David Frohnmayer.

Fanconi Anemia Research Fund Inc

Fanconi Anemia Research Fund: Research Grant Awards

The mission of the Koolen-de Vries Syndrome Foundation (KdVSF) is to accelerate the development of therapeutics for the treatment of Koolen-de Vries Syndrome (KdVS), aiming to improve the lives of those living with KdVS.

Koolen-de Vries Syndrome Foundation

KdVSF Investigator Grant

The Foundation for Prader-Willi Research (FPWR) is committed to funding research to advance the understanding and treatment of Prader-Willi syndrome (PWS). FPWR focuses on supporting innovative projects to find new treatments that alleviate the symptoms associated with PWS, aiming to improve the lives of those affected by this condition.

Foundation For Prader Willi Research

FPWR Grant Program

The mission of the RYR-1 Foundation is to support research focused on finding treatments and cures for RYR-1-Related Diseases (RYR-1-RD). The foundation aims to concentrate resources and efforts on advancements in scientific understanding and medical solutions for this condition.

The RYR-1 Foundation

RYR-1 Foundation: Individual Investigator Research Grant

The mission of the Hereditary Disease Foundation is to fund the most promising, innovative, and paradigm-changing research aimed at curing Huntington’s disease. This genetic brain disorder causes irreversible declines in mood, memory, and movement control, with no current cure or treatment available. By focusing on this single-gene disorder, the foundation hopes to unlock potential cures for other brain disorders such as Parkinson’s, Alzheimer’s, and Lou Gehrig’s (ALS) diseases.

CHARGE Syndrome Foundation: Clinical Research Grant Program

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