The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families, and other concerned parties. Their ultimate goal is finding a cure.
The Angelman Syndrome Foundation provides grants to support cutting-edge research related to Angelman syndrome, placing a strong emphasis on projects that promise to find treatments and ultimately a cure for this condition. The Foundation has allocated more than $10 million towards research that aims to improve life quality for individuals with Angelman syndrome today and in the future. Priority is given to research focused on studying or correcting the heterozygous effect of non-UBE3A genes in deletion, increasing UBE3A after therapies, delivery of therapies, and symptomatic therapies that impact daily life. Grants are awarded for one or two years, with amounts up to $100,000 per year.